THE MDS ALLIANCE
We are a member of the international umbrella organization MDS Alliance. This organization aims to ensure that MDS patients, regardless of where they live, have access to the latest resources and information about MDS, including current treatment options, large international projects, and events of interest to the whole community. As a member, we have the full support of the group and follow all guidelines provided by them.
Challenges for Kosovar patients
There are numerous challenges for patients in Kosovo suffering from MDS and similar conditions.
Cancer Support Community of Kosovo – CSCK
Don’t suffer in silence – Help us help you. Formed in March 2018, at CSCK we aim to raise awareness of cancer and offer support and information to patients, families and healthcare professionals across Kosovo. We campaign to increase the quality of life and make treatments available to those affected by the condition. Our interests are blood cancers and particularly myelodysplastic syndromes. Using our networks and national and international collaborations we aim to be the biggest cancer support platform in Kosovo by 2020.
How we do it?
If you live in Kosovo and are suffering from cancer then you’ve come to the right place. We will do the following:
- Put you in touch with fellow patients who may share their experience with you.
- Provide you with access to a list of consultants, specializing in your condition in Kosovo and nearby countries.
- Provide you with help and advice.
Help you receive the most up to date information on your condition, patient stories and current research.
In summer 2017, I went for a routine blood test. Usually, my blood has always been fine and I do a full blood count every year. I am generally extremely fit and active. This year the counts of a lot of the cells came back lower than expected. Finding out my actual diagnosis took a couple of months.